Wednesday, October 28, 2009

Liver & Onions

Sometimes we all need a good cry. It can be such a relief when those tears start flowing and there's no way to control them. It's like a sprinkling of rain watering the garden of the spirit... even when it comes from a gloomy storm cloud. Don't know about you, but my spirit is always thirsty and takes it in - which proves to me that I'm alive. Of course, I'm not really fond of the uncontrollable sobbing that signals a deep break in the flow of that spirit. That's just painful, and in my book no pain means NO PAIN!

Last month I received a letter from my donor's family, albeit anonymously. We're able to contact each other through an intermediary and I'd thought about writing for months but had trouble finding the words. Most of you who know me would find that surprising, right? But what HASN'T been surprising about this past year? Anyway, when I opened that letter and started to read, the tears flowed like the Mississippi. I read over and over again before I was able to take in the information and process it. I had just found out my donor's name from her adult daughter.

Now it's always been clear to me that I was pretty damn fortunate to receive that liver when I did. Often I thought about how difficult that time had to have been for the family who lost their loved one. Now I was actually hearing about K from someone who loved her and missed her. And what a lovely woman she was. Somewhat older than me, full of life and love, still a daughter, and a mother, and a grandmother when she died rather suddenly. I'm reluctant to divulge more details than that, because this letter felt just about as personal as the act of making love.

K had indicated on her driver's license that she was an organ donor. This gave her family no doubt at all as to her intentions, which made their loss somewhat easier to bear. Her daughter tells me that in the first months after their loss, they were actually comforted to know that somewhere, someone was benefiting from their mother's gift. She also told me that when it recently came time to renew her license, she listed herself as an organ donor.

This has been a pretty intense couple of years, friends. No matter how well we think we know ourselves, there's always more to be revealed (sorry to lift a slogan - but it's proven true.) Despite my best intentions, blogging about my recovery has fallen far short of my own expectations. That's partly a good thing - I've been pretty busy living my new life.

Now I can laugh and joke and carry on more than I have in years, for real. In fact, some of you saw me in the hospital and know that I'm basically a big old ham who loves attention. Even during the most dire crisis I could crack a few jokes, right? Even when coming out of a coma... Q: "Do you know your name? What year is it? Who's the President?" A: "groan... it's still the Idiot, isn't it? But not for long!" Now you know that I know that there's a part of me that's still deeply wounded by this whole experience. And it's a little frightening for me to let myself be too vulnerable. I have no idea how long that healing process will take, but at least for today I'm in no particular hurry. And I don't have a snappy ending either, y'all.

peace to all,

Monday, August 24, 2009

Catch Up (plus burger, mustard, and fries)

Hello friends,

and thanks for being there. I've taken most of the summer off from thinking OR writing about my health, at least here. I haven't been absent, just visiting another planet. After some initial resistance to the Facebook phenomena I dove in, friending like a maniac. I even started a farm, joined the mafia, and toyed with being a pirate. So far I've been able to resist vampire wars - too much blood, sorry. But never say never.

Now I return to the blog. I'm hoping that it'll get me back into a writer-friendly, reader-challenging frame of mind.

Here's a quick update of what I've been up to since June, and my move:

I did a lot of purging of old stuff, got rid of junk in the attic, and felt relieved to have it done. Got settled into my new place. Had a nice long visit and then a yard sale with Kim - then said goodbye as she headed east for her new life.
I spent a lot of time finding the right roommate, but finally did - and she moves in soon. In the meantime I've enjoyed the freedom of living alone, answering to no one, and being a slob. Last month there was a super-awesome visit with Zoe, including a couple of great shows. Of course I was sad when she left, but we'll see each other again soon.

I've had a million and five ideas for what to do next - with my life, with work, with anything and everything. Occasionally I get anxious. But so far I've been guided to the next thing, and the next. So I continue to have faith that it's all going to be just fine.

And my health is good. Yes, there are still medication changes and it's annoying. It affects my sleep and my energy and sometimes my mood. So I do have the occasional sad day, or bad day. But when I remember where I was a year ago... my gratitude returns. I'm alive and kicking, yee-haw!

Now I'm off to have a cheese-burger with fries and a chocolate malt.


Wednesday, May 13, 2009


Hey y'all, this has been a really busy month so far, leading up to the 6 month anniversary of my liver transplant. The big day is May 18th, which is just 2 days before my birthday, so there will be a lot for me to celebrate this year. That's even more true now that I've had all of the tests and procedures that are done to make sure that everything is continuing to work the way it should.

There's also been the joy of finally taking care of a few things that I haven't been able to do since way before the transplant. The fun part was finding a groovy new pair of glasses after a thorough eye exam. The not so fun part was a root canal, although I must say that my dentist has been incredible. Everyone continues to impress me all over Fairview Hospital. They've just opened a brand-new dental clinic at the Riverside location that provides special care for individuals who have complex medical issues, including transplant recipients. It really makes life a lot easier for those of us who've grown weary explaining the same basic information over and over.

There's a whole lot more going on, but I'll save some for later. For now I'll just mention that the rest of this month will continue to be busy. I'm packing up to move into the downstairs apartment of this big house where I reside. It'll be an interesting change to look out the window and not look down on everyone who walks by. Is that a metaphor for something?

peace and love,


Wednesday, April 29, 2009

Spring Has Sprung

Well... first of all, a big shout out to Giovani for saying that he misses my posts. (And by the way, my friend - your English is far superior to my Portuguese!)

At least there is a good reason for my absence. This month has been SO busy that I didn't realize how many days had gone by. In my last update I was focusing on the fractures in my vertebrae. I'm not taking any pain meds now, and it feels like it's getting better. Tomorrow I'll have more x-rays and talk to the neurosurgeon to see if there is progress with the healing.

So here's why I've been so busy: I am getting near the six month anniversary of my transplant and now there are lots of tests to check the liver. And of course I've also started therapy to get my head a bit looser. Yes, I worry too much.

One problem with immuno-suppressant medications is that they can cause transplant patients to become diabetic. Last week I had blood tests for diabetes; thankfully the tests were negative, so it's one less thing to worry about. Whew.

And so far the liver seems to be doing fine. I had an ultrasound to see my organs and it looked good. I've also had another biopsy but I won't know the results until Friday. Gosh. I'm getting tired just thinking about it all, so I guess that's why I've taken some time off from writing. There's also the fact that Minnesota is quite beautiful in the spring. Since the only exercise that's safe for me right now is walking, I've been taking lots of walks (except for rainy days.)

This weekend I'll try to walk all the way around my favorite lake. Wish me luck!


Sunday, April 5, 2009

I'm a Lazy Sod

I had a great weekend, with good friends, good food, (mostly) good weather, and good laughs. It was pointed out to me, though, that I haven't been writing here as often as I'd planned. I guess I'm more motivated to write when I'm down than when I'm up. Do other writers ever experience that? ;)

I guess I could give you some dining reviews (Culver's, mmm) or tell you all about Ms. Cho and her trannie warm-up act. But that's not really the focus of this particular blog... yet. So let me bring y'all up to date on my latest project:


Last week I saw the neuro-surgeon who had seen me in the hospital. I had been on morphine at the time so she wanted to make sure I remembered our previous conversation! I had actually remembered it so well that I checked out the Mayo Clinic website before seeing her again and I had lots of questions. (That site is an excellent resource, by the way.)

Long story short, since I'm in the 'high risk' category for loss of bone mass, I'm going to be starting on a different med called Pamidronate, which replaces the Fosamex. They've had good results with this for transplant patients. Starting Tuesday I'll be going into the Transplant Clinic for an IV infusion (a four-hour procedure) once every three months, starting Tuesday.
I also discovered that there's an even newer drug that doesn't just slow the bone loss, it actually builds bone mass. Unfortunately there isn't quite the long track record yet as there is with Pamidronate. But I have a good feeling about at least having choices.

We also further discussed the vertebroplasty, which is starting to look like a good option. Basically, I'm optimistic about one of these being successful. And just when the girls were all ready to come over & pimp out my faux torso!

Hopefully in the next few days I'll post my inside look at ambulance rides, EMT's and hot x-ray techs. I guarantee it will rival the series finale of "ER."


Monday, March 23, 2009

More Breaking News

Hi all,
I'm really worn out and not much in the mood for writing or reading or sitting or standing or talking or... actually, walking does help a bit. And I do want to keep this site up to date. Besides which, I am actually finding it therapeutic to write about these events as they occur. It seems to help my memory stay awake.

So here's a quick update on my condition:
For the second time in two weeks, I suffered a fracture (this time one of my lower vertebrae) while doing not much more than bending. I was taken to Fairview hospital late last Monday night and stayed until the pain was "under control" Wednesday evening.

The specialists say that I am at risk for more "stress fractures" like this to occur. The main culprit is lack of bone mass. Muscle weakness may also play a factor. After all, I was in hospital beds for most of the past several months. So exercise is important, but also dangerous. How's that for a conundrum?

I have been fitted for a special brace, which I am wearing now. It's made from rigid plastic from a plaster cast of my torso. Comfy! This is meant to prevent certain kinds of movement that might compromise my other vertebrae and ribs. I'm also taking Calcitonin now in addition to Fosamex. Other people have had great results with Fosamex improving their bone density, but that's really all I know about it at this point. In a few weeks I'll have another scan to see if the fractures are healing. Then they'll consider doing a "plasty" procedure: the fractures are injected with a type of cement to strengthen the bones. Unfortunately there is a risk (there usually is!) of making the upper vertebrae weaken and become more susceptible to fracture as well. 

By the way, the hospital staff remembered me and were great, as they usually are. But I still never want to see them again. EVER!


Thursday, March 19, 2009

Breaking News

Hi - I have to interrupt the next installment of the description of my last injury with the news of another injury. Again, a stress fracture. Again, the only apparent cause a sudden movement or bending or turning the wrong way. So the next installment will include more, more, more!

Love y'all, LK

Saturday, March 14, 2009

Going Up The Down Escalator pt.1

You may wonder what keeps transplant girl busy all day. Does she spend most of her time reclining on a Barcalounger, sipping a smoothie, idly perusing the latest issue of Bust? Or does Lady Laura of the Lucky Liver luxuriate in a foamy tub? (Too many alliterations? I'm just giving the gray matter a workout.)

Which reminds me, working out hasn't fit into the daily routine these past 2 weeks. I'm supposed to stretch my scrawny muscles to make up for months of being tied to the hospital bed. (Seriously, I WAS tied to the bed for awhile... don't ask, okay? And if you know, don't tell me yet, I'm not quite ready. And don't mention the word encephalopathy please. EVER.

Changing the subject, the Medic Alert package finally arrived. Gosh, that online shopping really pays off when the postman knocks. It's like Christmas, especially when the gift is a lovely charm bracelet. Mine's lavender, by the way.

Anyway, I HAD been making excellent progress with the stretching until one morning last week. Woke up, leaned over to pick up my slippers, and... crack! No, not the kind that's smoked, and not the sound your breakfast cereal makes in between the snap and the pop. It was the sound of a sad little rib breaking free from it's home. A scary intake of breath and... owww... Pretty lucky for me that the cel phone was on the nightstand, not in the charger where it usually sleeps. Because I...COULD... NOT... MOVE... Thinking that I might have punctured a lung... speed dialing... friend calls 911... says they're on the way... keep trying to breathe... hear the ambulance... firemen yelling, banging the door... someone says "Get the Axe!"... (yeah, that's what they do) and a burst of adrenaline gets me off the bed, staggering into the arms of a paramedic as he says, "Lady, you just saved yourself a door."

Well, that's a relief.

Stay tuned for the next installment... 
peace out,

Friday, March 13, 2009


Just a quick note today for those of you who follow this dramady. 
I REALLY DO want to keep this spot updated but the past 2 weeks have given a whole new meaning to the word "aaarrrggghhh"!
I'll post more later, but for now just allow yourself to be flummoxed by the fact that it is indeed possible to dislocate a rib while reaching for your slippers. Seriously.

more to be revealed...

Saturday, February 28, 2009

I Have Not Been Playing Hockey, or Hookie

As anyone can see, I have not posted here for several weeks. After the benefit, there were visits from family and getting prepared to be home on my own.

I'm still receiving A LOT of help from friends, but I am starting to feel a bit overwhelmed by the amount of work involved in my recovery. Managing medications alone takes up a lot of time.  I'll soon start to attend counseling sessions to help me reconstruct events of the past many months. Thankfully Kim will be reading my medical records and translating them for me - I'm just not ready to do it myself.

At some point we may even post photos from the many hospital stays. I've seen similar photos on other websites, and it's been very helpful, making it more real for me. There's just so much that I don't remember at all. That's not necessarily a bad thing, I guess. Apparently there were times when it looked like I might not make it. Not sure I'm ready to think about that.

Again, thanks to everyone who has followed this crazy trip. I hope to thank you all personally when time allows.


Thursday, January 29, 2009

Season of Firsts?

It's very exciting to report that I have gotten excellent 'grades' from the visiting nurse/therapists and that I'll be able to go on MORE and LONGER field trips. In fact my escort extraordinaire Kim will be making her first visit to Red Wing MN when we go to see Margaret Cho in April! Yay! Super duper tenth row tickets, baby. "Beautiful" is the name of Ms. Cho's new performance.

Of slightly more mundane excitement is the fact that I was able to get in & out of the shower for the very first time since leaving the hospital rehab. I will never again take for granted the simple things like hot water & shampoo. Seriously. Some of you may know what I mean.

I'd like to write more but I think it's time for dinner!

xo - Laura

Friday, January 23, 2009


and the winners are...

ALT Bike & Board Tune-up $65 value Steve Faust
Brian Graham Salon Gift Certificate #1 Adela Peskorz
Brian Graham Salon Gift Certificate #2 Laurel Vasileradis
Bryant Lake Bowl Gift Certificate Steve Rood
Café Maude Gift Certificate #1 Liberty Lucken
Café Maude Gift Certificate #2 Ronald Hewitt
Center for Happiness Class Pass Adam Hall
Cheapo Gift Certificate $50 Elaine Wedel
Chindian Gift Certificate #1 Pat Woods
Chindian Gift Certificate #2 Liberty Lucken
Ecopolitan Gift Certificate Nichole Weiner
Electric Fetus Gift Certificate #1 Caroline Kelly
“ “ Gift Certificate #2 Jen Sandquist
“ “ Gift Certificate #3 Kathy Daugherty
“ “ Gift Certificate #4 Jen Sandquist
“ “ Prize Pack #1 John Pervola
“ “ Prize Pack #2 Richard Ellioff
Fontana Distribution Kissology Box Set Mary DuCharme
Galactic Pizza Gift Certificate Robin Rife
Minnesota Twins Tickets Pat Woods
Mr. Chan Presents Tickets Nevanka G.
Moxie Salon Prize Pack #1/GC Sage Holben
Moxie Salon Prixe Pack #2/GC Randy Nordquist
Moxie Salon Prixe Pack #3/GC Cyn Collins
Moxie Salon Prixe Pack #4/GC Paul Larson
Namaste Gift Certificate #1 Jon Copeland
Namaste Gift Certificate #2 Amy Myrbo
Nash Frame Gift Certificate Richard Ellioff
Nick & Eddie Gift Certificate #1 Jeremy Fisher
Nick & Eddie Gift Certificate #2 Beth Wakefield
Purity Facial Gift Certificate Adam Hall
Red Stag Gift Certificate Eric Neese
Revolver USA Prize Pack #1 Ronald Hewitt
Revolver USA Prize Pack #2 Jody Wahl
Revolver USA Prize Pack #3 Helen T.
Roadrunner Records Gift Certificate John Ziegler
Robot Love Prize Pack Max Duckler
Robot Love Gift Certificate Jill Jacobson
Scott Seekins Print “Have you seen …” Tim Holmes
Scott Seekins Print “Trashy Jokes” Nichole Neuman
Scott Seekins Print “… Brittany” Kate Maillette
Sebastian Joe’s Gift Certificate John Pervola
Smitten Kitten Prize Pack Heidi Kalweit
Spot Spa Boutique Gift Certificate #1 Jennifer DeJonghe
Spot Spa Boutique Gift Certificate #2 Lissa Kleven
Spot Spa Boutique Gift Certificate #3 Max Duckler
Spot Spa Boutique Gift Certificate #4 Holly Besinger
Spot Spa Boutique Gift Certificate #5 Jess Matelski
Spot Spa Boutique Gift Certificate #6 Jim Bradt
Walker Art Center Prize Pack Elaine Wedel
Warner Music Group Prize Pack #1 Pat Woods
Warner Music Group Prize Pack #2 “ “

GRAND PRIZE! Zune Music Player #1 Randy Nordquist
GRAND PRIZE! Zune Music Player #2 David Barton

SPECIAL BONUS1 Bush Tetras Gift Pack #1 Nell Ruckler
SPECIAL BONUS1 Bush Tetras Gift Pack #2 Jon Wurm
SPECIAL BONUS1 Bush Tetras Gift Pack #3 Tiffany Durkee
SPECIAL BONUS1 Bush Tetras Gift Pack #4 Jessica Wiger
SPECIAL BONUS1 Bush Tetras Gift Pack #5 Dave Campbell
SPECIAL BONUS! Poster/Laura’s Collection Jon Copeland
SPECIAL BONUS1 Poster/Laura’s Collection Tommy (on Ticonderoga)

Better Late Than Never!

Hello again. So... somewhere between having a visiting nurse, a visiting therapist, two visiting furnace repair people, meds, one visiting pastry-laden Aureliano, meals, naps, more meals, more meds, visiting humor-laden Sarah H and Liberty L, and a late-night calorie-laden snack... I did finish organizing the list of raffle-ticket winners! Yay! Sorry it took so long, folks. We struggled with reading the names scrawled on those tiny ticket stubs. Winners are posted here, but of course will also be notified personally by telephone. If we cannot reach you immediately we will mail your prize sometime during the next week. Thanks again to all of you for participating.

xo - Laura

Wednesday, January 21, 2009

Riff Raffle

Yes it was a great weekend but it's Wednesday and I'm still feeling it in my bones. This morning the visiting nurse (physical therapy) taught me some gentle stretches for my back. I keep trying to remind myself that I've only been home from hospital/phys. rehab for a little over a week! There is a long slow road ahead. Of course I'm really anxious to get back to my old self, but it will be a long and slow process. Thanks again to all of you for your patience and understanding.

BTW, the raffle did take place on Sunday afternoon, a bit later than planned, but oh well. Everyone is tired and stressed out from putting on the event and I love/thank them all. Raffle prize winners will indeed be notified soon, hopefully by the end of the week. We have to make a lot of phone calls! I did also start to type up a list of winners, but my capacity is limited so that list is not yet complete. Maybe tonight or tomorrow. Thanks for your patience. I'm so lucky to have such a tremendous support system. This whole plan was Vicky's idea and she is taking a much needed day or two to recharge batteries. Other friends are pitching in to help. I'm not going to mention them all by name right now, they know who they are.

xoxo - Laura

Monday, January 19, 2009

Wow! What a Weekend

Only home from the hospital a week, but with Dr’s permission I did leave the house on Saturday and Sunday.
Having my former band mates (Bush Tetras) fly in to the mini apple to support me was a real homecoming. We hadn’t seen each in years (yes, I love mpls and have no desire to return to nyc!) so this visit boosted my energy. I probably overdid it, going out to the benefit concert for 3 hrs on Saturday night and then meeting everyone for brunch at Nick & Eddie on Sunday: Wow! Who needs sex drugs and rock and roll when you have Jessica’s butterscotch pudding?
While Doug drove the band off to the airport, we threw raffle tickets into a big vase and picked out some winners. It seems as though quite a few people bought large quantities of tickets, and when you see the list of winners you’ll notice that a few got very lucky. On the flip side, I’m sure there are also those that missed out, the law of averages being whatever – but a huge thank you to those of you who participated. The proceeds have gone into the fund that was created for me to help with all my expenses during the crucial first year post-transplant.
I do want to thank all of you individually as well for your contributions and your positive energy, but there has been so much response that it may take me several months to get those thank-yous done. Please know that I’m grateful for your support & encouragement.
XOXO – Laura
P.S. List of raffle prize winners will follow soon, I promise!

Saturday, January 17, 2009

Shout Out to My Angels

I've just started to read the comments on this blog. You may not know this, but soon after it was created (with help from some angels) I became quite sick and unable to participate. The news has been spread by other angels, and angels have been at my side for the past six months of this long journey.
Now I find myself at a loss for words, completely awed by all the love and good wishes coming my way. I so want to write each of you personally and I promise to do that some time in the coming months. There are hundreds of people who have contributed or sent greetings. Some are long lost friends, others may have seen the band back in the day, but rest assured that each and every one of you have contributed to raising my spirits and given me the will to keep fighting. Bless you all.

Friday, January 16, 2009

Extra! Extra!

An excellent piece written by Jim Walsh in the Minneapolis Star-Trib today hyping the show and Laura. Leave it to Laura to be bleeped out in a newspaper article...

Wednesday, January 14, 2009


I'm home! The recent past is a blur. My friends have been telling me what happened over the past 4 or 5 months. It's what I imagine it must be like to wake up from a coma.
I'll write more later (it's supposed to be therapeutic) but for now just a shout out to all of my beautiful friends and supporters. Your good wishes and prayers did get through to me.
Much love,
ps - For now I have Dr's permission to attend the benefit! If you are on the dance floor beware, I have a weapon at my disposal.

Wednesday, January 7, 2009

Minneapolis Benefit for Laura Kennedy Update


Hard to believe that nearly a month has passed since my last post. Some news regarding the Minneapolis Benefit for Laura on January 17th...David Thomas from Pere Ubu will be joining the festivities. My hope is that he will recreating birdcalls and doing his most modern dance. Of course there is a Bush Tetras/Pere Ubu connection as Laura and Cynthia were deemed the "Nerve Gas Dancers" many years ago. Hopefully their story will be told the night of the benefit.

Laura is being released from the transitional care facility on Friday (!) and as we prepare for her return home I can hardly believe the events of the last 2 months. To everyone who has offered help here in the Twin Cities and to those of you who have sent words of encouragement and financial support we cannot thank-you enough.


JANUARY 17TH @ 9:00
1612 Harmon Place

Tickets are available on-line at:

and at Nick & Eddie, Treehouse Records, The Electric Fetus and Eclipse Records.

See you at the should be quite a night.



Saturday, January 3, 2009

New Year, New Challenges

Hello and a huge thank you to all who have been so supportive with thoughts, prayers, and donations. I promise that once I am back home and better recovered, I will respond to your cards, letters, and emails.

So yes, I have gotten a liver through a very sudden sequence of events. Getter sicker and potentially losing the chance of a live donor (part of a liver) I was again admitted to the hospital where apparently I had a bad fall. Not long after my position on the transplant list went higher, and suddenly a liver was available. Surgery was done quickly, though I was pretty out of touch before, during and after.
Chances for recovery are better, though, with the whole (deceased) liver option.

Goddess blessings to all of you who have healthy organs and note youself willing to be an organ donor. You have no idea how it can change so many lives.

The work seems to be ongoing, though. I'm receiving an education here from the Transplant Clinic staff. The patients who make the best recovery are the ones who are able to manage large amounts of information. I've also had to cempletely adjust my thinking. I've spent years looking after my health and finding ways to boost my immune system. Now I've got to be on medicantions that suppress my immune functions, so the new liver won't be rejected. After a period of time feeling overwhelmed, I'm trying to embrace this opportunity, take whatever time I have left, and challenge myself to visit some new territories.

Blessings to you all.